Legislative Recommendations for Long Term Care Reform
1. Direct the Health and Human Services Commission to develop a long range plan to re-balance long term care services for Texans with Disabilities. This plan should include the following components:
1. Develop a diversely represented Task Force to guide plan development.
2. Close and consolidate State Supportive Living Centers (SSLC) as the population decreases. The closure process must include the choices of those choosing to remain in these facilities and ensure those who wish to leave have every opportunity to do so.
3. Ensure supports and services for people living in the community are available, exceptional and accountable.
4. People transitioning from SSLC’s to community settings should develop a Person Directed Plan to ensure the successful transition in order to meet individual needs.
5. Money Follow the Person protocols utilized for people with disabilities exiting nursing homes and private ICF-MR facilities should be incorporated to support people exiting SSLCs.
6. Designate all funding saved through consolidation and closure of SSLCs to fund people with disabilities on Waiting Lists for community services and supports.
2. Consolidate Medicaid Waivers into a system that determines services based on needs generated through Person Centered Planning.
3. Expand Consumer Directed Services (CDS) options to all waiver services and ensure information on how to access these services is readily available and accessible.
4. Personal Care Attendants and other Direct Support Professionals must be paid a living wage of plus appropriate benefits.
Contact David Wittie at 512-512-577-8982 or Cindi Paschall at 817-281-6730 for more information
OR
Email: communitynowfreedom@gmail.com
Monday, August 30, 2010
Texas 82nd Legislative Session A Case for Long Term Care Reform
* Texas faces a major budget crisis during this Session. People with disabilities are facing the very real possibility that their services will decrease or be cut altogether. Those on Medicaid Waiver waiting lists have little hope of additional funds for more slots. Community services and supports are at risk as funding for State Supportive Living Centers (SSLCs) continues to grow.
* The system of long term care services is fragmented and inequitable. With 100,000 people on waiting lists and about 4400 people in SSLCs. The cost of 16,000 people who receive services in the community through Home and Community Based Services (HCS) is about as much as the 4400 people living in SSLCs.
* In a recent report updating SSLCs prepared by the Department of Aging and Disability Services, (DADS) projected taxpayer costs just to maintain SSLC facilities will reach almost 475 billion dollars over the next five years while the population at these facilities is projected to decrease to about 3500 people by 2013.
* It is critical to maintain quality, safe care for people who choose to live in SSLCs. The Department of Justice continues to find ongoing, chronic health and safety issues at all 13 facilities as a part of routine monitoring efforts. The SSLCs with the largest populations continue to show patterns that lead to abuse, neglect and poor health care.
* During the 81st Legislative Session, an unprecedented number of bills were filed calling for the development of a long term strategic plan to re-balance long term care to create equity in choice and balance to a grossly unbalanced system.
* Long term care reform is not about taking the choice and opportunity for people to live in a SSLC, it is about honoring the choice of all people with disabilities, including those who languish on waiting lists.
* Community Services for people with disabilities consistently cost less money than state institutions or SSLCs. This is evidenced by the Texas State Auditors’ Report in 2007 and the Legislative Budget Board’s report on state schools in 2007. As Texas makes difficult decisions during this fiscal crisis, it is not only important to value the choices people make about where they want to live, but to balance our limited resources.
For More Information contact: David Wittie at 512-557-8982 or Cindi Paschall: 817-281-6730
* The system of long term care services is fragmented and inequitable. With 100,000 people on waiting lists and about 4400 people in SSLCs. The cost of 16,000 people who receive services in the community through Home and Community Based Services (HCS) is about as much as the 4400 people living in SSLCs.
* In a recent report updating SSLCs prepared by the Department of Aging and Disability Services, (DADS) projected taxpayer costs just to maintain SSLC facilities will reach almost 475 billion dollars over the next five years while the population at these facilities is projected to decrease to about 3500 people by 2013.
* It is critical to maintain quality, safe care for people who choose to live in SSLCs. The Department of Justice continues to find ongoing, chronic health and safety issues at all 13 facilities as a part of routine monitoring efforts. The SSLCs with the largest populations continue to show patterns that lead to abuse, neglect and poor health care.
* During the 81st Legislative Session, an unprecedented number of bills were filed calling for the development of a long term strategic plan to re-balance long term care to create equity in choice and balance to a grossly unbalanced system.
* Long term care reform is not about taking the choice and opportunity for people to live in a SSLC, it is about honoring the choice of all people with disabilities, including those who languish on waiting lists.
* Community Services for people with disabilities consistently cost less money than state institutions or SSLCs. This is evidenced by the Texas State Auditors’ Report in 2007 and the Legislative Budget Board’s report on state schools in 2007. As Texas makes difficult decisions during this fiscal crisis, it is not only important to value the choices people make about where they want to live, but to balance our limited resources.
For More Information contact: David Wittie at 512-557-8982 or Cindi Paschall: 817-281-6730
Corey, Who?
A boy named Corey. Probably in his late teens. Beaten by a state Supportive Living Center employee in Austin. Beaten at night by the a man who is underpaid. Corey had Autism and behavior problems. Note the pictures of his bruises. Cameras will be installed at the Austin State Supportive Living Center in the fall.
Whew. I am glad the cameras are going to be installed. That is a relief to me. I am comforted to know that my tax dollars are going to pay for cameras to be placed in the common areas of these state operated institutions for those people. I mean State Supportive Living Centers. I feel better when I say State Supportive Living Centers. When I call these institutions State Supportive Living Centers, I feel better about them and myself because it is really hard to think of anyone living in Institutions in 2010. When I say State Supportive Living Centers it is also hard for me to think about Corey being beaten by someone paid to support him because it seems that beatings may not really happen in a place called a State Supportive Living Center. I do not even want to use an acronym, ASSLC because I do not like what that acronym may mean to others.
I am very glad about these cameras. I understand that these cameras are very expensive which probably means the state employees paid to watch the tapes will be able to see the tapes on HD. This is good, because I am sure these employees paid to view these tapes deserve HD as they are underpaid. Oh, I found out that the cameras are going to be installed in the “Common Areas” in the State Supportive Living Center. This means our underpaid state employees who view the tapes will get a really good view of what happens in living rooms, dining rooms and hallways. This is good. But…and I don’t want to be critical in anyway, but this kid, uh, what is his name…Corey, yeah. I think he got his ass kicked in his own bedroom or the room he sleeps in. I have heard that folks who get to live in State Supportive Living Centers have rooms kind of like; you know…a college dorm. Yeah. Like living in a college dorm your whole live. Anyway. This unfortunate situation of this kid being beaten is still a little sketchy. I mean the guys charged with doing it, say they didn’t do it. Now, Corky was on special supervision for his violent behavior. This staff guy was outside of his room all night and then suddenly the next morning, the boy had bruises everywhere. I am thinking that the boy may have fallen out of bed causing multiple bruises that look like fist marks. Or this may have just been an isolated incident.
Back to this camera situation. I really do feel better knowing that these state employees who monitor the video on these cameras placed in “Common Areas” will be able to catch the bad guys beating people up. This may not work for this boy’s situation as he was stomped in his own bedroom, a place where cameras aren’t allowed and I respect this boy’s right to privacy. I really do. AND…this brings up another point. If the staff really beat this kid, don’t you think they would have dragged him out of his room, down a hallway and into a common area so the staff watching the HD could see it happen? I bet they would have woken up immediately and run out the secret video room and stopped what happened to this kid.
Now. Please believe me when I say I really hate vulnerable people being beaten on my tax dollars. BUT. Please remember those poor staff that continue to beat people in their charge. These are tough jobs and you get what you pay for. I mean, really. Can you imagine a job that you have to go to every day where you have to work with people that piss you off so much that you simply have to beat the crap out of them? How can I judge these staff people? I have no idea the conditions they have to work in. They only have GEDs and are starting at around $10.00 an hour. Gratefully they get great health benefits, retirement, vacation and holidays. AND a state employees union that will stand by their union buddies not matter what! I am an old Union guy. Those guys in the coal mines deserve Union support. Their product is coal. Keeping people under your thumb in horrible conditions is no different and State Supportive Living Centers have a product to keep and that is to keep em going so more money can be spent to support these hard working staff. I mean look at the history of the State Supportive Living Centers.
The Department of Justice is watching over them. Like God’s Angels they are. These G-Men are doing a great job so far. They have shown reports about State Supportive Living Centers that show the same old so called problems. Rampant abuse, horrible medical care, people being kept there against their will. It has been over a year now that the DOJ has been in these State Supportive Living Centers and they have been busy making reports and I’m sure they will get to the bottom of these problems. They are G-Men for God’s sake. Too bad for Calvin though. He just got caught behind the ole eight ball. A day late and a dollar short! I know he must appreciate all of these efforts to keep him safe and knows things will be better soon. He may not have realized this blanket of safety; this Federal Shield was there for him when he was being pounded. I hope he has been informed and is appreciative. I know I am.
My gosh. I have spent so much time writing all of this down. I usually just let all of this stuff go when I read something bad about a State Supportive Living Center. But for a few moments, Charlie’s story really got to me. Oh it is such a mess. I apologize for this rambling bunch of statements. Should have spent more time on the pre season Football scores. It is all so overwhelming. Best to leave all of this in the hands of those who have done such a great job for so long. Just wanted to say. Good Luck, Corey!
A Concerned Texan!
Whew. I am glad the cameras are going to be installed. That is a relief to me. I am comforted to know that my tax dollars are going to pay for cameras to be placed in the common areas of these state operated institutions for those people. I mean State Supportive Living Centers. I feel better when I say State Supportive Living Centers. When I call these institutions State Supportive Living Centers, I feel better about them and myself because it is really hard to think of anyone living in Institutions in 2010. When I say State Supportive Living Centers it is also hard for me to think about Corey being beaten by someone paid to support him because it seems that beatings may not really happen in a place called a State Supportive Living Center. I do not even want to use an acronym, ASSLC because I do not like what that acronym may mean to others.
I am very glad about these cameras. I understand that these cameras are very expensive which probably means the state employees paid to watch the tapes will be able to see the tapes on HD. This is good, because I am sure these employees paid to view these tapes deserve HD as they are underpaid. Oh, I found out that the cameras are going to be installed in the “Common Areas” in the State Supportive Living Center. This means our underpaid state employees who view the tapes will get a really good view of what happens in living rooms, dining rooms and hallways. This is good. But…and I don’t want to be critical in anyway, but this kid, uh, what is his name…Corey, yeah. I think he got his ass kicked in his own bedroom or the room he sleeps in. I have heard that folks who get to live in State Supportive Living Centers have rooms kind of like; you know…a college dorm. Yeah. Like living in a college dorm your whole live. Anyway. This unfortunate situation of this kid being beaten is still a little sketchy. I mean the guys charged with doing it, say they didn’t do it. Now, Corky was on special supervision for his violent behavior. This staff guy was outside of his room all night and then suddenly the next morning, the boy had bruises everywhere. I am thinking that the boy may have fallen out of bed causing multiple bruises that look like fist marks. Or this may have just been an isolated incident.
Back to this camera situation. I really do feel better knowing that these state employees who monitor the video on these cameras placed in “Common Areas” will be able to catch the bad guys beating people up. This may not work for this boy’s situation as he was stomped in his own bedroom, a place where cameras aren’t allowed and I respect this boy’s right to privacy. I really do. AND…this brings up another point. If the staff really beat this kid, don’t you think they would have dragged him out of his room, down a hallway and into a common area so the staff watching the HD could see it happen? I bet they would have woken up immediately and run out the secret video room and stopped what happened to this kid.
Now. Please believe me when I say I really hate vulnerable people being beaten on my tax dollars. BUT. Please remember those poor staff that continue to beat people in their charge. These are tough jobs and you get what you pay for. I mean, really. Can you imagine a job that you have to go to every day where you have to work with people that piss you off so much that you simply have to beat the crap out of them? How can I judge these staff people? I have no idea the conditions they have to work in. They only have GEDs and are starting at around $10.00 an hour. Gratefully they get great health benefits, retirement, vacation and holidays. AND a state employees union that will stand by their union buddies not matter what! I am an old Union guy. Those guys in the coal mines deserve Union support. Their product is coal. Keeping people under your thumb in horrible conditions is no different and State Supportive Living Centers have a product to keep and that is to keep em going so more money can be spent to support these hard working staff. I mean look at the history of the State Supportive Living Centers.
The Department of Justice is watching over them. Like God’s Angels they are. These G-Men are doing a great job so far. They have shown reports about State Supportive Living Centers that show the same old so called problems. Rampant abuse, horrible medical care, people being kept there against their will. It has been over a year now that the DOJ has been in these State Supportive Living Centers and they have been busy making reports and I’m sure they will get to the bottom of these problems. They are G-Men for God’s sake. Too bad for Calvin though. He just got caught behind the ole eight ball. A day late and a dollar short! I know he must appreciate all of these efforts to keep him safe and knows things will be better soon. He may not have realized this blanket of safety; this Federal Shield was there for him when he was being pounded. I hope he has been informed and is appreciative. I know I am.
My gosh. I have spent so much time writing all of this down. I usually just let all of this stuff go when I read something bad about a State Supportive Living Center. But for a few moments, Charlie’s story really got to me. Oh it is such a mess. I apologize for this rambling bunch of statements. Should have spent more time on the pre season Football scores. It is all so overwhelming. Best to leave all of this in the hands of those who have done such a great job for so long. Just wanted to say. Good Luck, Corey!
A Concerned Texan!
Wednesday, August 18, 2010
Wet Blanket
Corey Baker, a young man, a 17 year old teenager with Autism was beaten at Austin State Institution.
He has the bruises to prove it. Bruise pics and link to story You can read the articles in the paper. The articles may have been posted on your disability rights list serve. I know the story was posted on the Community Now! List serve…with little to no response. It like this huge wet blanket. A nasty wet blanket thrown over me. Smothering me. Dragging me down, holding me down. Having hard time breathing. I am being driven to drink a glass of wine, watch mindless TV and just let it go. Just another beating. Yet another one. And I know. I know, there is one happening right now as I write. It is eight pm now, which means the night shift, is in full swing at our ridiculously titled 13 State Supportive Living Centers. The night shift. A time of terror for people we will never know. The night shift. Poorly trained people under supervised, poorly educated, given the power to let people live or die. The whiff of this kind of power is stagnant and rank. An unholy place where evil can happen and does.
I am sickened by this most recent beating. My heart breaks for this Mom who had no choice but to put her son in an institution, four hours away from his home. How many of you parents out there have been very close to making the horrible decision to place your child in an institution? I have. It is a dark place.
I know people that have had to make decisions to put their family at risk to keep their kid out of an institution. They hold on, hold on, hold for that damn slot to come open. Some cannot hold out and have only one choice: An Institution. I cannot and won’t sit in judgment of families who have to place their child in an institution because their child does not have the support he needs to live at home. This decision is personal and horrible.
And what about Corey? Mom having to make a tough decision is one thing. But, what about Corey? According to the newspaper, he was recently moved from his home in Colorado where he lived with his Grandmother to Texas to live with his Mom. His whole world was completely changed. For any young person, this is difficult. If you have Autism, it can be totally overwhelming. Corey was asked to change his life and when he got to Texas, other than the hellish heat, he most likely got nothing. No supports, nothing. Oh, yeah. Wait for 8-12 years to get a waiver slot, or go into an institution.
Where is the outrage? I hear nothing.
I am not going to sit quietly. I am not. Silence is complicit with the evil. If I am quiet, then I am complicit. You too, for that manner.
And to clarify, we must get everyone out of state institutions that want out and develop a long range plan to close the institutions no longer needed( I mean for God’s sake, even DADS says it will cost almost a half a billion dollars just to keep the buildings maintained over the next five years). This plan must take steps to return any money garnished from closures to fund the waiting list, so people like Corey aren’t put in harm’s way because they have no other choice. That is it. Simple and to the point. Get em out, close the ones we don’t need, shift money to those waiting.
Corey could have very easily ended up like Michael Nicholson in Lubbock. justice4michael.com Dead. Strangled and beaten. Tortured. It appears that Michael had Autism as well. Seems like in Texas institutions, behavior programs for people with Autism include systematic torture.
The Wave is coming. The Autism wave is coming. It is a tsunami. If we don’t fix things now, and this mean creating a system of supports for people with autism to live in their communities, then our institutions will be full. We will have to build another 13, maybe 30.
The message is about balance and real choice.
I started out with this whatever it is I am writing talking about the “Wet Blanket”. It is evil this blanket that will give us permission to be complacent. Every Corey, is my own child, is Michael Nicholson, is Haseeb Chishty, is, is, is. We have to fight the complacency of our daily lives. The lives where we are just trying to get through the day with a child that is tough. Trying to keep a job, trying to have a life, keep a marriage together or struggle to pick up the pieces when it fails. Getting through days where our old friends don’t come by anymore or family is distant and no one really understands. When we don’t have time for our other kids or our child with a disability has his heart broken because of her difference or, or, or…
As hard as we struggle today, we must find a moment to invest in the future of our children. I know many of you may have young children and that every night when you drop without a huge crisis is a good day. I have met so many wonderful people who struggle and give up so much for their children, who have a vision that their baby has a gift to give. And we all need make sure she is present in her community to share that gift.
I know it is asking a great deal of you to step up and do something. It may seem so far away that anything you do now can make a difference. The future of our children is smack in the middle of what we do today. There are 10s of thousands of people waiting on waiting lists. Quality community services and supports can be spotty. Finding exceptional behavioral support is really hard to find in Texas. You can make a difference by being a part of organized action. Action as simple as a phone call delivered at the right moment to the right legislator, an email, a visit to your State Rep or Senator with a group of other families. Bring your kids!
find your Texas legislator link
And for every call or email or whatever you do, it will keep you from the horrors of complacency, the temptation to ignore Corey because all of this is so overwhelming and nothing seems to change and what can I do anyway?
You can act. You. can. act. And when you rest or have a moment of calm you will know that that moment, on that day, you acted. On that day, you started a savings account paid out in action for your kid’s future.
Several advocate groups are planning a news conference and Rally on September 1st, the beginning of Texas’ new fiscal year to stand for community services..
Texas has a 100,000 people waiting for community services. But they keep dumping more and more money into these institutional hellholes. 1/3 of all funds already go to these institutions, which only serve 9% of folks with disabilities in the state.
Plan to meet September 1st.
Write/fax/visit your legislators. Make sure they know your story.
Get ready to educate these legislators more. Because they must know our kids are valuable members of our communities. And we are not supposed to live in a world where we are forced to lock them away.
Contact Community Now! (communitynowfreedom@gmail.com) Join our list serve or one of our Coalitions. This upcoming Legislative Session will be bloody. Our state faces a huge budget deficit and our children are often the first to get something taken away from them. We are 100,000 strong. Those of us on waiting lists, our families and friends await their shot at the American Dream. This Sleeping Giant has to wake up and be heard with a loud voice calling for equity, choice and the immediate end to a system build on blood, graft, and the backs of innocents.
Choose Freedom,
Ginny
He has the bruises to prove it. Bruise pics and link to story You can read the articles in the paper. The articles may have been posted on your disability rights list serve. I know the story was posted on the Community Now! List serve…with little to no response. It like this huge wet blanket. A nasty wet blanket thrown over me. Smothering me. Dragging me down, holding me down. Having hard time breathing. I am being driven to drink a glass of wine, watch mindless TV and just let it go. Just another beating. Yet another one. And I know. I know, there is one happening right now as I write. It is eight pm now, which means the night shift, is in full swing at our ridiculously titled 13 State Supportive Living Centers. The night shift. A time of terror for people we will never know. The night shift. Poorly trained people under supervised, poorly educated, given the power to let people live or die. The whiff of this kind of power is stagnant and rank. An unholy place where evil can happen and does.
I am sickened by this most recent beating. My heart breaks for this Mom who had no choice but to put her son in an institution, four hours away from his home. How many of you parents out there have been very close to making the horrible decision to place your child in an institution? I have. It is a dark place.
I know people that have had to make decisions to put their family at risk to keep their kid out of an institution. They hold on, hold on, hold for that damn slot to come open. Some cannot hold out and have only one choice: An Institution. I cannot and won’t sit in judgment of families who have to place their child in an institution because their child does not have the support he needs to live at home. This decision is personal and horrible.
And what about Corey? Mom having to make a tough decision is one thing. But, what about Corey? According to the newspaper, he was recently moved from his home in Colorado where he lived with his Grandmother to Texas to live with his Mom. His whole world was completely changed. For any young person, this is difficult. If you have Autism, it can be totally overwhelming. Corey was asked to change his life and when he got to Texas, other than the hellish heat, he most likely got nothing. No supports, nothing. Oh, yeah. Wait for 8-12 years to get a waiver slot, or go into an institution.
Where is the outrage? I hear nothing.
I am not going to sit quietly. I am not. Silence is complicit with the evil. If I am quiet, then I am complicit. You too, for that manner.
And to clarify, we must get everyone out of state institutions that want out and develop a long range plan to close the institutions no longer needed( I mean for God’s sake, even DADS says it will cost almost a half a billion dollars just to keep the buildings maintained over the next five years). This plan must take steps to return any money garnished from closures to fund the waiting list, so people like Corey aren’t put in harm’s way because they have no other choice. That is it. Simple and to the point. Get em out, close the ones we don’t need, shift money to those waiting.
Corey could have very easily ended up like Michael Nicholson in Lubbock. justice4michael.com Dead. Strangled and beaten. Tortured. It appears that Michael had Autism as well. Seems like in Texas institutions, behavior programs for people with Autism include systematic torture.
The Wave is coming. The Autism wave is coming. It is a tsunami. If we don’t fix things now, and this mean creating a system of supports for people with autism to live in their communities, then our institutions will be full. We will have to build another 13, maybe 30.
The message is about balance and real choice.
I started out with this whatever it is I am writing talking about the “Wet Blanket”. It is evil this blanket that will give us permission to be complacent. Every Corey, is my own child, is Michael Nicholson, is Haseeb Chishty, is, is, is. We have to fight the complacency of our daily lives. The lives where we are just trying to get through the day with a child that is tough. Trying to keep a job, trying to have a life, keep a marriage together or struggle to pick up the pieces when it fails. Getting through days where our old friends don’t come by anymore or family is distant and no one really understands. When we don’t have time for our other kids or our child with a disability has his heart broken because of her difference or, or, or…
As hard as we struggle today, we must find a moment to invest in the future of our children. I know many of you may have young children and that every night when you drop without a huge crisis is a good day. I have met so many wonderful people who struggle and give up so much for their children, who have a vision that their baby has a gift to give. And we all need make sure she is present in her community to share that gift.
I know it is asking a great deal of you to step up and do something. It may seem so far away that anything you do now can make a difference. The future of our children is smack in the middle of what we do today. There are 10s of thousands of people waiting on waiting lists. Quality community services and supports can be spotty. Finding exceptional behavioral support is really hard to find in Texas. You can make a difference by being a part of organized action. Action as simple as a phone call delivered at the right moment to the right legislator, an email, a visit to your State Rep or Senator with a group of other families. Bring your kids!
find your Texas legislator link
And for every call or email or whatever you do, it will keep you from the horrors of complacency, the temptation to ignore Corey because all of this is so overwhelming and nothing seems to change and what can I do anyway?
You can act. You. can. act. And when you rest or have a moment of calm you will know that that moment, on that day, you acted. On that day, you started a savings account paid out in action for your kid’s future.
Several advocate groups are planning a news conference and Rally on September 1st, the beginning of Texas’ new fiscal year to stand for community services..
Texas has a 100,000 people waiting for community services. But they keep dumping more and more money into these institutional hellholes. 1/3 of all funds already go to these institutions, which only serve 9% of folks with disabilities in the state.
Plan to meet September 1st.
Write/fax/visit your legislators. Make sure they know your story.
Get ready to educate these legislators more. Because they must know our kids are valuable members of our communities. And we are not supposed to live in a world where we are forced to lock them away.
Contact Community Now! (communitynowfreedom@gmail.com) Join our list serve or one of our Coalitions. This upcoming Legislative Session will be bloody. Our state faces a huge budget deficit and our children are often the first to get something taken away from them. We are 100,000 strong. Those of us on waiting lists, our families and friends await their shot at the American Dream. This Sleeping Giant has to wake up and be heard with a loud voice calling for equity, choice and the immediate end to a system build on blood, graft, and the backs of innocents.
Choose Freedom,
Ginny
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