Wet Blanket

Corey Baker, a young man, a 17 year old teenager with Autism was beaten at Austin State Institution.

He has the bruises to prove it. Bruise pics and link to story You can read the articles in the paper. The articles may have been posted on your disability rights list serve. I know the story was posted on the Community Now! List serve…with little to no response. It like this huge wet blanket. A nasty wet blanket thrown over me. Smothering me. Dragging me down, holding me down. Having hard time breathing. I am being driven to drink a glass of wine, watch mindless TV and just let it go. Just another beating. Yet another one. And I know. I know, there is one happening right now as I write. It is eight pm now, which means the night shift, is in full swing at our ridiculously titled 13 State Supportive Living Centers. The night shift. A time of terror for people we will never know. The night shift. Poorly trained people under supervised, poorly educated, given the power to let people live or die. The whiff of this kind of power is stagnant and rank. An unholy place where evil can happen and does.

I am sickened by this most recent beating. My heart breaks for this Mom who had no choice but to put her son in an institution, four hours away from his home. How many of you parents out there have been very close to making the horrible decision to place your child in an institution? I have. It is a dark place.

I know people that have had to make decisions to put their family at risk to keep their kid out of an institution. They hold on, hold on, hold for that damn slot to come open. Some cannot hold out and have only one choice: An Institution. I cannot and won’t sit in judgment of families who have to place their child in an institution because their child does not have the support he needs to live at home. This decision is personal and horrible.

And what about Corey? Mom having to make a tough decision is one thing. But, what about Corey? According to the newspaper, he was recently moved from his home in Colorado where he lived with his Grandmother to Texas to live with his Mom. His whole world was completely changed. For any young person, this is difficult. If you have Autism, it can be totally overwhelming. Corey was asked to change his life and when he got to Texas, other than the hellish heat, he most likely got nothing. No supports, nothing. Oh, yeah. Wait for 8-12 years to get a waiver slot, or go into an institution.

Where is the outrage? I hear nothing.

I am not going to sit quietly. I am not. Silence is complicit with the evil. If I am quiet, then I am complicit. You too, for that manner.

And to clarify, we must get everyone out of state institutions that want out and develop a long range plan to close the institutions no longer needed( I mean for God’s sake, even DADS says it will cost almost a half a billion dollars just to keep the buildings maintained over the next five years). This plan must take steps to return any money garnished from closures to fund the waiting list, so people like Corey aren’t put in harm’s way because they have no other choice. That is it. Simple and to the point. Get em out, close the ones we don’t need, shift money to those waiting.

Corey could have very easily ended up like Michael Nicholson in Lubbock. justice4michael.com Dead. Strangled and beaten. Tortured. It appears that Michael had Autism as well. Seems like in Texas institutions, behavior programs for people with Autism include systematic torture.

The Wave is coming. The Autism wave is coming. It is a tsunami. If we don’t fix things now, and this mean creating a system of supports for people with autism to live in their communities, then our institutions will be full. We will have to build another 13, maybe 30.

The message is about balance and real choice.

I started out with this whatever it is I am writing talking about the “Wet Blanket”. It is evil this blanket that will give us permission to be complacent. Every Corey, is my own child, is Michael Nicholson, is Haseeb Chishty, is, is, is. We have to fight the complacency of our daily lives. The lives where we are just trying to get through the day with a child that is tough. Trying to keep a job, trying to have a life, keep a marriage together or struggle to pick up the pieces when it fails. Getting through days where our old friends don’t come by anymore or family is distant and no one really understands. When we don’t have time for our other kids or our child with a disability has his heart broken because of her difference or, or, or…

As hard as we struggle today, we must find a moment to invest in the future of our children. I know many of you may have young children and that every night when you drop without a huge crisis is a good day. I have met so many wonderful people who struggle and give up so much for their children, who have a vision that their baby has a gift to give. And we all need make sure she is present in her community to share that gift.

I know it is asking a great deal of you to step up and do something. It may seem so far away that anything you do now can make a difference. The future of our children is smack in the middle of what we do today. There are 10s of thousands of people waiting on waiting lists. Quality community services and supports can be spotty. Finding exceptional behavioral support is really hard to find in Texas. You can make a difference by being a part of organized action. Action as simple as a phone call delivered at the right moment to the right legislator, an email, a visit to your State Rep or Senator with a group of other families. Bring your kids!

find your Texas legislator link

And for every call or email or whatever you do, it will keep you from the horrors of complacency, the temptation to ignore Corey because all of this is so overwhelming and nothing seems to change and what can I do anyway?

You can act. You. can. act. And when you rest or have a moment of calm you will know that that moment, on that day, you acted. On that day, you started a savings account paid out in action for your kid’s future.

Several advocate groups are planning a news conference and Rally on September 1st, the beginning of Texas’ new fiscal year to stand for community services..

Texas has a 100,000 people waiting for community services. But they keep dumping more and more money into these institutional hellholes. 1/3 of all funds already go to these institutions, which only serve 9% of folks with disabilities in the state.

Plan to meet September 1st.

Write/fax/visit your legislators. Make sure they know your story.

Get ready to educate these legislators more. Because they must know our kids are valuable members of our communities. And we are not supposed to live in a world where we are forced to lock them away.

Contact Community Now! (communitynowfreedom@gmail.com) Join our list serve or one of our Coalitions. This upcoming Legislative Session will be bloody. Our state faces a huge budget deficit and our children are often the first to get something taken away from them. We are 100,000 strong. Those of us on waiting lists, our families and friends await their shot at the American Dream. This Sleeping Giant has to wake up and be heard with a loud voice calling for equity, choice and the immediate end to a system build on blood, graft, and the backs of innocents.

Choose Freedom,

Ginny